Linda Thornrose on IVIG: Is There No Place Like Home?
Ellen, please, one more thing. I am encouraged and amazed at your son's story and the importance of having a team of doctors who work together. I have often been frustrated, as recent as last month,...
View ArticleLinda Thornrose on IVIG: Is There No Place Like Home?
Ellen, while I agree with your frustration, I also understand the person who shared her frustration and don't believe anything personal was meant by her story. I honestly believe this forum is for...
View ArticleEllen Stanley on IVIG: Is There No Place Like Home?
I have to respond to the blogger who became resentful of cancer pt's because they were "lucky" because their course of chemo was limited. Did you ever stop to think that maybe these people were a on...
View ArticleEllen Stanley on IVIG: Is There No Place Like Home?
My son who has CVID since 2003 was getting his IVIG in a Hem-Onc clinic setting until 2008 at which time he changed to SCIG. In 2012, he was dx with T cell rich B cell lymphoma and received R-CHOP...
View ArticleLinda Thornrose on IVIG: Is There No Place Like Home?
Kim, I tried subq, but it didn't work for me due to tape allergies, and irritations at each needle site. I am back to IVIG because it is more convenient for me to give up one day a month than have to...
View ArticleKim on IVIG: Is There No Place Like Home?
I am hoping and praying I will get disability through the school system so I can keep my insurance . I am trying for disability after working 3 years in a moldy building feeling horrible. I wish you...
View ArticleSheila on IVIG: Is There No Place Like Home?
For me now, getting IVIG at the hospital has been the cheapest way to go since I only have Medicare. My portion every 2 weeks with only Medicare would be $500-$600 per IV since they only pay 80%. The...
View ArticleLinda Thornrose on IVIG: Is There No Place Like Home?
After reading all these comments, I feel especially blessed! I have been receiving home infusions since my third treatment, every 28 days, for ten years. I have had the same nurse who has become a...
View ArticleKim on IVIG: Is There No Place Like Home?
Why is it that some people do subq like I do and others do IVIG.Is this something to do with insurance?
View ArticleEarl Frazier on IVIG: Is There No Place Like Home?
I am very fortunate in that my infusion is done by a Nurse who previously worked for the University of Michigan. He is a very caring individual who maintains a high level of professionalism. For those...
View ArticleDebbie Moreno on IVIG: Is There No Place Like Home?
I am so sorry about your experience with home health infusion. I have been receiving home health infusion for over 5 years now and I realize how fortunate I am to have a wonderful nurse that makes the...
View ArticleLianne Learnard on IVIG: Is There No Place Like Home?
Pauline, I am so sorry for your bad experience. We did do home health with my daughter and we loved it. We now have SCIG and we need no nurses or visitors. SHe can study watch TV. cook or just relax....
View ArticleDonna on IVIG: Is There No Place Like Home?
I was forced to go to a new infusion center because my insurance changed. All centers are not the same and the quality of the service is certainly not the same. I was so glad when the insurance company...
View ArticleLeigh on IVIG: Is There No Place Like Home?
I also wanted to add, I even became resentful of cancer patients. I know, how crazy is that, right? But they would talk to each other and say oh I only have 3 more treatments, this is my last one! and...
View ArticleLeigh on IVIG: Is There No Place Like Home?
I think for everyone it's a very individual decision. For me, when first diagnosed, I was set up with an Oncologist/Hematologist and would infuse at his office infusion center. I did this there for 2...
View ArticleSheila on IVIG: Is There No Place Like Home?
I can totally sympathize with this post. For the first 8 years I received my IVIG in the home and for most of that every 2 weeks. I became a living pin cushion. My worst experience was 13 sticks and 2...
View ArticleIG Nursing Notes on IVIG: Is There No Place Like Home?
Side Effects of IG Therapy: How to Prevent and Manage ThemSide Effects of IG Therapy: How to Prevent and Manage Them
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